Ben De Young has been going to watch, and help direct, the Friesland Community Band since he could walk. The 26-year-old with Down syndrome “directs” each show behind director Rose Kramer. Ben also has a Band-Aid on his baton, because he also wants to be an EMT some day.
Jeanne Swiatowiec has never felt the loneliness of an empty nest, although she has been widowed for 30 years and three of her children are married.
Swiatowiec, 78, still shares her home with her daughter, Beth, 43, who has Down syndrome. After so many years together, their daily routine is as well-rehearsed as a ballet. Swiatowiec cooks dinner, while her daughter sets the table. Swiatowiec washes the laundry, and her daughter dries and folds it.
“All my friends say I’m lucky to have her for company,” says Swiatowiec, of Chicago. “It’s never lonesome around the house.”
Mothers such as Swiatowiec were “pioneers” — the first generation of families to insist on raising their children at home rather than in institutions, says Marsha Seltzer, director of the University of Wisconsin-Madison’s Waisman Center, which focuses on developmental disabilities.
Construction is now under way for a first of its kind facility to help children with Down syndrome.
Gov. Steve Beshear was among the people helping to break ground for the Down Syndrome of Louisville’s Lifelong Learning Center near the intersection of Bardstown Road and Hurstbourne Lane.
The center is the first in the nation to offer educational enrichment and personal development from birth through adulthood for people with Down syndrome.